Wednesday, March 11, 2009

The Top is Off

The only new orders from the Doctor today was for the nurses to get Reece into a Crib and out of the isolation bed that he has been in for the past week. The fact that Reece is a full term baby and is able to hold his body temperature is allowing him to move to the crib. Although I do not think Reece will be able to tell the difference between the two beds this sure does make it easier for mommy and daddy to get at our little boy.

We continue to be humbled by all of the emails, phone call and post that we have been receiving and want all of you to know that we truly appreciate each and everyone of you.

Please pray that the tube into Reece's stomach, that he continues to pull out 1-4 time a day, can be permanently remove and that he will continue to show progress everyday.

4 comments:

  1. Hi Sue-
    Glad to hear Reece is in a big boy bed now! No more kissing plexi glass:) We praise God for that. Keep putting your trust in God, he will see you through to the finish line.
    God Bless,
    Tina Jacobsen

    "Let the morning bring me word of your unfailing love, for I have put my trust in you."
    Psalm 143:8

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  2. Hey guys! It was SO nice to see both of you (and Reece) today! Sorry I couldn't stay longer - had to make sure I was home in time for the bus! Thanks for feeding me :) that was really nice of you, next time I'll bring the lunch! Seeing Reece in his new crib was such a blessing! See you all soon! Love ya tons!

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  3. You have no idea who I am but just wanted you to know that I pray for you both and Reece as you go through this difficult time.

    It took me a long time to conceive so my children have been so welcomed into my life.
    I realized what a special gift God has given me
    through the life of having children.

    Its not esay to have a child sick ... how well I know about that. When my daughter was born she was a immediate emergency C-section. I didn't get to see my baby for she was born blue and in distress. I remember wanted to hold this baby
    I just gave birth and they told me that they were running tests on her. The news finally came that my daughter had been born with Group B infection and learning that is the most fatal
    infection a baby could have. I could not hold my baby till the 3rd day after giving birth to her.She stayed in the hospital for ten days.
    We had a nurse come for the next three months
    to check on my daughter. I remember talking to God that I just wanted my daughter for a year then He could have her for I came to realize that she is a gift from God and she belonged to God first then me . The group b strep got better and she had no problems in the years to come. Since learning about group b I am so glad
    God has spared her from all the things that could have gone wrong..what a amazing God we have
    My daughter is 18 and doing well and she is amazing gal for she is on the national honor society, she plays piano,flute and organ and has
    several more gifts that God gave her. Now again I am giving her over to God to take care of her for she is going to college int he fall while I can't be there with her.

    Then three years after her birth I had a son.
    I tested positive for group b strep at the beginning of my c-section again and the doctor gave him the antibotic before he was born. So he didn't get the group b strep. I was so thankful for that.
    But his life was far from esay for he had his first asthma attack at ten months. By the time he was four he had his first bout of menegitis.
    He struggled with his health when he was young.
    He had menengitis again when he was seven along suffering from asthma, allergies and other things. When he had his first asthma attack again I was reminded of that he is special gift from God and that I needed to trust that God would take care of him and that as a parent I have to be his advocate of getting the best medical care. After his second bout of menegitis I got the doc to approve of us going to Mayo Clinc in Rochester, MN . My son and I went and found he had a bad reflux (GERD) and was aspirating into his lungs really bad.
    The Wings of Mercy was so helpful to us
    with flying us to Mayo and back home again.
    The doctors at De Vos Childrens Hospital performed surgery to repair his bad GERD problem and things got better yet he had to learn how to eat for so many years he couldn't eat alot of food due to the GERD issue.
    I thought he was healed and a couple of years later he started have some health issues. My son and I flew to Cinncinnati Childrens Hospital to find out he has EE (Eosinophilic Esophagitis).
    Again Wings of Mercy was so kind to get us there and back home again.
    We learned that his EE would never go away but he has had to find out what foods caused his esphogus to flair. We are still in the process
    of finding the food that causes the flair.
    Now my son is fifteen and leading a normal life-
    inspite of the EE that is going on.
    He is on the national honor society ... in fact he is in two AP classes at the local high school that he goes too and is getting straight A's in all of his classes.

    De Vos Childrens Hospital has been so wonderful part of taking care of my children and so grateful for each of them that have played a role in taking care of my children

    Through this learned I realize what a special gift our children are and how God is such a faithful God in taking care of us.
    Also that these children that God gives us are not ours they first belong to Him first.
    I have learned that time and time again.

    So again I am praying for you all and especially Reece ... sounds like he is a fighter and He has God on his side !!!!!!!!!

    In God's Amazing Grace,Hope,Love and Mercy !!

    There are many circumstances in life

    That are not pleasant, to say the least.

    Many things we go through

    Seem to drive us to our knees.

    In all of life's storms and trials,

    Which are sometimes not a few,

    We must choose to trust in God.

    He will always see us through.

    We cannot afford to be angry

    Or blame God when things go wrong.

    Jesus is always with us and,

    Even in sorrow, we can have a song.

    The choice is ours to make.

    Which one will it be?

    Will we become bitter or better?

    What will others see?

    If we choose to trust in God,

    And let Him lead us out,

    He will fill our heart with faith

    And take away our doubt.
    The things which we go through

    May, at times, leave hurts or scars.

    Jesus is the 'Faithful One'

    Who turns life's scars into stars.

    If we shine for Jesus,

    As we walk through this life,

    He will see us through

    As He forgives sin and strife.
    One day, when life is over

    And we shall enter in,

    We shall behold our Lord in His eternal joy,

    Which shall never end.

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  4. So happy to hear this wonderful news about Reece's continued improvement. God is so good! You all will continue to be in our prayers. Your updates on the blog are such a blessing to read.

    Heather and the rest of the Kleis Family

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